We have been home for 3 days now and Maddy is doing very well. Honestly, we have to remind her that she needs to take it easy. She is running around, playing, reading, etc. She acts as if nothing has happened. The biggest things we've noticed so far:
1. She's happier. She'll laugh and then say, "That makes my head feel funny!" and then keep laughing.
2. She will randomly say, "Mommy, Dr. Bingaman made my eyes stop going up." We are at 11 days without a seizure so far.
3. She is more affectionate than before. She's always been affectionate but she loves to snuggle and hold us close.
She has been seizure free for 11 days so far. That may seem small but the last time we went that long without a seizure was in October. The big thing is that I don't think I expected this to work. I know that probably sounds awful but given our history with brain surgery (Nathan's mom) and the fears of what would happen with surgery, I honestly expected the surgery to equal lose for our family. Let me explain...
I prepared myself for potential lose of a child. I had to prepare myself for all options. I didn't dwell on this, but I had to go ahead and prepare myself for the worst outcome.
I prepared myself for lose of the little girl I knew. I had heard that removing this part of the brain could cause mood swings and change in personality. I was prepared for her waking up with a different personality.
I prepared myself for lose of physical abilities. There had been talk of potential language issues or motor skills since we didn't know if the left side of her brain potentially controlled things we weren't aware of.
I prepared myself for lose. I didn't know what it would look like but I knew that something would happen. I prepared and waited.
Then...
I walked into the room after surgery expected to see my lose and I saw my spunky girl fighting off the nurse. Ha! It was a hard thing to see her so emotional and panicky but she was the girl I had dropped off in the operation room. I can't express to you the joy I have seeing her laugh and run around happier than ever. I can't verbalize the excitement that I feel when she rides in the van and asks me how to spell words like "hospital", "telephone" and "apple" so she can correctly put them into her little laptop her grandparents got her years ago. I feel so blessed that the Lord has given us such a blessing. We were prepared to say God is good no matter our lot, but we are rejoicing that our lot is such blessing. She's doing well and she's happy. We're happy. We are blessed and overjoyed!
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